Double Listing: A Promising Option for Certain Patients

We recently participated in Mediaplanet USA’s “Hepatitis & Liver” campaign where industry professionals and associations came together to draw attention to the importance of liver health, while highlighting hepatitis awareness, testing education, and treatment to erase the stigma and judgments attached to the disease.

Dr. Rolf Barth, director of Liver Transplantation, was featured in an article about the types of patients who typically see results from double listing. He mentions patients with less threatening illnesses, who do not require immediate transplantation, can stand to gain more from a double listing, whereas the sickest patients are already at the top of the list, and do not necessarily benefit.

The campaign was distributed within the centerfold of USA Today and is published on a Mediaplanet original site. You can read the full article here: http://umm.gd/1NON6hs

Thanking Donors with All of Our Heart

By: Hope Gamper, Editorial Intern

Most people know February 14th as Valentine’s Day,  but February 14th also shares the honor of being National Donor Day. National Donor Day honors donors of organs, tissues, marrow, platelets and blood. This Valentine’s Day, consider giving the gift of life to someone in need and celebrate the amazing generosity of former donors.

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A Great Need for Organ Donors

Every 10 minutes, someone is added to the waiting list for an organ. While UMMC offers multiple listing, potentially allowing a patient to receive an organ sooner, the need for donors is still great.

As the demand for organs rises, so does the need for organ donors. There are two types of organ donors: deceased donors and living donors, and both play an important role in healing someone in need.

A donation from a deceased individual can save as many as 8 lives and the process is facilitated by the Living Legacy Foundation. Deceased donors can provide tissues, corneas and organs such as the kidneys, pancreas, liver, lungs, heart and intestines. Donations are only considered after all life-saving efforts have been exhausted. To prepare for this type of donation, update your driver’s license donor status through the MVA.

The living organ donation process allows living individuals the ability to donate whole kidneys or parts of the liver, pancreas, lungs and intestines. Most of these organs either regenerate on their own or can function without a small portion. Receiving a transplant from a living donor is often an alternative to waiting on the national transplant waiting list. Learn more about living donation for a loved one.

Where Donations Go

Transplant surgeons at UMMC perform a total of more than 420 transplants, but there are currently more than 123,000 people in need of lifesaving transplants. You may direct a donation to a specific individual or your donation may go to the next eligible person on the waiting list. Patients who receive your donation will be matched based on an array of factors including blood type and severity of illness.

To those in need, donating an organ is an indescribable gift.  Successful UMMC transplant recipients for heart, kidney, lungliver and other conditions, have gone on to live joyfully once again.

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To the Heart of the Matter – Ways You Can Help

  • Consider giving the gift of life this Donor Day. Learn more about providing a living donation for a loved one from the UMMC Transplant Center.
  • Become an organ donor by opting in the next time you renew your driver’s license or filling out the online registry form here: https://register.donatelifemaryland.org/
  • Sign up with the Red Cross for a UMMC blood drive to donate blood or platelets.

And most importantly, thank an organ donor and their heroic and truly altruistic gift that has given thousands of people a second chance at life.

Nurses Run for their ‘Heart Kids’

By Jen Arrington, MS, RN, CPN, and Kristen Fantel, BSN, RN, CEN

On Oct. 12, 17 nurses and friends of the Pediatric Intensive Care Unit (PICU) will be running in the Baltimore Running Festival to raise money for the UMMC Children’s Heart Program. When people ask us why we run, there’s one easy answer. We run for patients like Brandon Kerrigan and all of the heart kids that we care for everyday.

When Brandon celebrated his 15th birthday on Aug. 16, no one had any idea that two days later he would be fighting for his life. Brandon was diagnosed with dilated cardiomyopathy, and went into cardiac arrest while being flown from Easton to the University of Maryland Children’s Hospital. Once Brandon was stabilized, his family was told that he would need a heart transplant. Since his arrival to the PICU, Brandon has been determined to get strong while he waits for his heart. He charms the nurses and staff with his bright smile and Nerf guns, just trying to be a normal 15-year-old, while cooped up in the hospital. You can see how charming he is in this picture of us with him at the bottom of our team page.

Brandon is only one example of a patient we are running for. We care for many cardiac patients in collaboration with the Children’s Heart Program. This program provides comprehensive cardiac care for children with a wide range of conditions — from rhythm abnormalities to childhood hypertension, from heart murmurs to serious birth defects requiring complicated heart surgery. While we care for these complex patients, they quickly become a part of our unit – we offer an encouraging smile to their parents in the hallway, we say our silent prayers. And on good days – we dodge Nerf guns as we enter the patient’s room.

The strength and resilience of these children, who battle against all odds, is simply inspiring. As nurses, we are often left with the feeling of wanting to do more. We carefully assess these patients for any changes in condition, we give medications, we advocate for their every need, and we attempt to play and create normalcy whenever we can. But we want to do more.

This is why we decided to run as part of the Children’s Heart Team. We don’t have a miracle drug and we can’t take away the heartache in the eyes of the parents of these patients. But we can run.

As with all of the patients we care for, the teamwork involved in the care of these patients is also inspiring. The team includes Nurses, Doctors, Child Life Specialists, Respiratory Therapists, OR and Cath Lab Staff, Rehabilitation Services – and many, many other people who deserve to be celebrated.

This strong team work was the inspiration for our fundraising efforts. We created a T-shirt that recognizes this team effort, and we are selling the T-shirt around the hospital in order to raise money for the Children’s Heart Program.

In addition to the shirt, we are also hosting a fundraiser at a local restaurant. Join us on Wednesday, Oct. 2, at Blue Hill Tavern in Canton. The restaurant will be donating 20% of its proceeds from the day to our cause. Schedule a lunch with your co-workers, dinner with your family, or join the PICU nurses for Happy Hour – and help an important cause.

Want to join us in our effort to do more? Contact us! Maybe today we can give back a little bit of the inspiration that we have received from these amazing children.

To make a donation: http://www.ummsfoundation.org/picuheart

The ‘Seeker’ Gives Through a Living Kidney Donation

Matthew Taylor writes about “living an authentic life in a world of artifice” in his blog, “The Seeker.” This week, he posted a frank and engaging piece about donating one of his kidneys to his wife, who suffered from polycystic kidney disease.  Here’s an excerpt:

“After some soul searching, I decided to give her one of mine. It was not an easy decision to make since there were many factors to consider, but I am at peace with it now. In fact, I’ve come to appreciate some things about a kidney transplant that I never would have thought of before.”

Taylor, a writer who lives in Rockville, Md., gave the University of Maryland Medical Center, where his donation and his wife’s transplant were performed, permission to direct readers to his post,  “25 Ways to Appreciate a Kidney Transplant.”

The University of Maryland Medical Center is home to the second-largest kidney transplant program in the country. The surgeons involved in Taylor’s donation and his wife’s transplant were Michael Phelan, MD; David Leeser, MD; and Stephen Bartlett, MD.

A Gift of Life and Friendship After a Family’s Loss

The weekly StoryCorps segment on National Public Radio’s Morning Edition is a highlight for the show’s listeners. Today’s StoryCorps interview was very special to staff at UMMC.

Rick Bounds received a lifesaving liver and kidney transplant here in 2007. Today, he’s a healthy triathlete with four competitions and a 100-mile bike ride to his name. And he serves as a member of the Medical Center’s Patient and Family Partnership Council.

Go to the NPR site to hear or read the conversation between Rick Bounds and Dorothy Biernack, whose husband, Marty, was the organ donor who made it possible for Rick to live. Rick and Dorothy get together several times a year to celebrate Marty’s lifesaving final gift.

Man Celebrates Six-Year Anniversary of Heart Transplant during April’s Donate Life Month

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When I first found out that I needed a heart transplant, I didn’t believe it. I was in denial since I was in such good shape all of my life. I hardly even got a cold. I couldn’t believe that my heart was giving out.

Ten years ago after years of being an avid runner, I was growing more and more tired. I went to my general doctor who did an EKG, and he found something abnormal. It was determined that the right electrical node in my heart was not firing correctly, so I had a pacemaker put in. I continued running for the next two years. Then the same problem occurred on the left side of my heart and another pacemaker was put in.

After four years and two pacemakers, my heart started to completely deteriorate. I had an interview with Dr. Erika Feller who determined that I was a transplant candidate. I was added to the transplant waiting list and admitted to UMMC. Throughout the week they had to run tests on me. While at the hospital, I went into cardiac arrest, and I was upgraded to a pump. A couple days later a match was found. I felt great and relieved; it was only five days between the cardiac arrest and the time I got my new heart.

I didn’t wake up initially after the transplant. The toxins in my blood were at such a high level that they brought me into exploratory surgery where they discovered that I also needed my gall bladder removed.

Recovery was pretty good for me. The doctors and staff at UMMC were great. They took good care of me and got me up and walking soon after the surgeries. Two weeks after the transplant I returned home and continued walking around my community. In less than three months after my transplant, I was able to return to work.

It has been six years since my transplant, and I’m able to run again. Every weekend I go walking with the guys in the neighborhood, about 4 to 5 miles. I am also very passionate about sailing. I sail a fair amount and send Dr. Feller a picture of me on my boat every April, which is the anniversary of my transplant.

I would highly recommend that people indicate they want to be organ donors on their driver’s license. Organs are greatly needed, and you may save someone’s life. You never know when tragedy may strike or when your health may deteriorate. But even with a sad tragedy, some good can come out of it. If it had not been for the generosity and foresight of my donor, I probably would not be here.

Young Accountant Reaches Professional Milestone One Year After Living Donor Liver Transplant

By Jennifer Dietrick

Baltimore, MD

FEBRUARY 18, 2013 — As of today, I am officially one year post-op! One year ago, Dr. Barth and Dr. LaMattina had finished the living donor liver transplantation that saved my life!  When the doctors returned to the waiting room to update my family, the entire room erupted in applause! My boyfriend, Rob, was the donor.  Here’s what I’ve been up to in the past year:

I’ve been very busy with work. Being an accountant, this is our busiest time of the year so I am trying really hard to keep up. My biggest goal is to become a CPA (Certified Public Accountant). The test is VERY difficult. It is split into 4 grueling sections which require about 2 months of intensive studying each, while working a full-time schedule.

Before I went into acute liver failure, I had passed 2 parts of the exam (halfway!) but unfortunately, all 4 parts of the exam must be passed within an 18-month time frame. I lost the 2 parts that I had passed during the past year while I was focusing on my recovery. It was very disappointing. In December of 2012, I finally started getting some energy back after struggling with persistent anemia and a hematocrit between 28-30 (36 is normal). I studied really hard during the holidays and took 1 part on January 4 and I just found out that I PASSED!! Now I am on my way again to achieving my goal — and I am only 1 year post-op.

It’s such a wonderful feeling! During the past year, my recovery was really difficult and it seemed like I would never get better and now, 1 year out, I am down to 2 pills, twice a day and living a completely normal life!

I wanted to share this with other patients in hopes that it may provide some hope for anyone recovering or for those who have loved ones recovering from transplants or any other major surgery. There IS a light at the end of the tunnel and it is frustrating getting there but if you keep on working at it, you WILL go on to live the life you imagined and more!

You don’t have to be defined by the fact that you are a transplant recipient or let it hold you back from accomplishing your goals and dreams! Yes, I received a liver transplant but hopefully in the future I will be defined as Jennifer Dietrick, CPA!!

 

Country concert raises $12,000 for organ donor clinic

living donor clinicFrom Left: Event organizers Marla Blackwell and Lee Adams; Jo Funk, LCSW-C, living donor clinic social worker; Debora Evans, David B. Leeser, MD, chief of kidney and pancreas transplantation, and Janice J. Eisele, senior vice president, UMMS Foundation.

By Caroline Killian

UMMS Foundation

The UMMS Foundation is proud to report that the Fifth Annual Living Donor Country Concert raised a record amount this year – just over $12,000 dollars!  This year’s concert took place on September 11  at the Harmony United Methodist Church in Falling Waters, W.Va., providing an intimate venue for guests to experience a “Night with Nashville.”

Attendees listened to acoustic performances from country stars James Wesley and Dustin Lynch, and were treated to a “meet and greet” with the artists after the show. The show also featured a silent auction with items signed by country superstars, including Tim McGraw, Kenny Chesney, and Taylor Swift.

Dustin Lynch performed his hit single, “Cowboys and Angels”, which reached No. 2 on the Billboard Hot Country Songs Chart. His self-titled debut album recently entered the Billboard Country Chart at No. 1, making Lynch the first new male artist to debut at that spot this year.

The concert was attended by several UMMC Transplant team members, including David B. Leeser, MD, chief of kidney and pancreas transplantation at the University of Maryland Medical Center.

 “It was an outstanding event in that it was about giving and donation, and they opened up the sanctuary,” Leeser said. “We had a bunch of young people in a church listening to music and learning about transplantation. It was an amazing event.”

Dr. Leeser recalled a powerful moment of the night: “One of the artists sang a song he had written late one night at a time when he was frustrated and he hadn’t broken through and become successful yet. He said ‘This is a song, a prayer I wrote, that I said I’d never sing unless I was in a church.’ So he sang it.”

The money raised from the concert will support UMMC’s Living Donor Follow-Up Clinic, which provides follow-up care for living organ donors who have generously given the gift of life.  After surgery, living donors have four follow-up visits within two years after donating a kidney.  In supporting the post-operative care for our living donors, the Living Donor Country Concert helps to ensure the Clinic’s ability to provide world-class, long-term care for our donors.

To learn more about the Country Concert and to donate to the Living Donor Clinic, please visit: http://www.ummsfoundation.org/concert.

UMMC Mentorship Plants Seeds of Discovery With Local Student

by Lauren Goldschen

As a rising senior at Atholton High School in Howard County in August of 2010, I was excited to start my Intern/Mentor Program provided through my school. This program encourages students within the Gifted and Talented Program to apply for internships/mentorships with professionals who hold careers students admire. I’ve always wanted to become a doctor, and I envisioned my mentor as a local physician who would teach me how to schedule patients and take vital signs.  I did not anticipate that the reality of my internship would actually entail observing transplant surgeries and becoming a published author in the #1 peer-reviewed surgery journal, Annals of Surgery.

Finding a mentor for the program was certainly a struggle as I applied to numerous physicians throughout the area. My high school teacher, Mrs. Natalie Kelly, and I received numerous rejections from local physicians. I stumbled upon the University of Maryland Medical Center’s (UMMC) website, which conveniently listed physicians’ names with contact information and their ongoing research projects. I selected a variety of doctors and sent emails explaining the intern/mentor program and asking if they would serve as my mentor.

Although I anticipated more negative feedback, I was amazed that multiple doctors at UMMC responded and agreed to participate as my mentor. It was even more incredible that the first positive response came from Dr. Stephen Bartlett,  Peter Angelos Distinguished Professor at the University of Maryland School of Medicine, Chair, Department of Surgery at UMMC, and Surgeon-in-Chief and Vice President of the University of Maryland Medical System, who graciously agreed to serve as my mentor.

On my first day with Dr. Bartlett, I watched him perform a kidney transplant. And on my second day, I met Dr. Bartlett’s colleague,  Dr. Rolf Barth, assistant professor at the University of Maryland School of Medicine and transplant surgeon at UMMC, who would become another one of my mentors.

My internship project was to compare patient satisfaction rates of living kidney donors who donated via the novel single-port donor nephrectomy versus living donors who donated via the standard multiple port technique. UMMC’s single-port donor nephrectomy utilizes a single incision in the belly button to remove a kidney from living donors. UMMC was the only the third hospital in the country to adopt this single incision donation technique as the standard of care for all living kidney donors.

The UMMC transplant team believed that this technique, which is more cosmetically appealing and less invasive, could attract more living kidney donors and help decrease the growing kidney transplant wait list. But before the procedure could be promoted, the surgeons first needed to determine if donors preferred this novel single-incision procedure to the standard multiple port procedure.

I began my internship project by writing a survey for living kidney donors that addressed their pain levels after donation and satisfaction rates with the overall donation process. The surveys were distributed to UMMC donors of both the novel single-port and the standard procedure. Read about the survey data that were published in the Annals of Surgery.

My internship was extremely rewarding and memorable, and I’m continuing my internship with the transplant team now as a college student. I enjoy accompanying the doctors on hospital rounds and observing the transplant surgeons interact with their patients. There have been numerous teachable moments, especially in the operating room in which I get to learn about anatomy from a truly unique perspective. I also value the advice that both Dr. Bartlett and Dr. Barth share with me regarding college decisions and future medical career plans.

Although I always knew I wanted to be a doctor, I had never before considered the research aspect of medicine. However, this internship experience has certainly sparked my research curiosity. Currently, I work in a cell biology lab studying the aging process of kidneys, and this summer I am again working at UMMC with Dr. Bartlett and Dr. Barth to investigate the transplant results of different immunosuppressant drugs.

This fall I will be a sophomore Biology Major/Spanish Minor at the University of Pittsburgh. I plan to attend medical school, and due to the wonderful opportunities provided by Dr. Bartlett, Dr. Barth, and the UMMC team, I know that research will always be a fundamental part of my medical career.

UMMC Kidney Transplant Team Hangs on for Dear Life

Contributed by Michelle Klein
Pre-Transplant Coordinator, UMMC Division of Transplantation

Scared. Panicked. Frightful.

What am I doing?

These were some of the feelings I was having in the final moments before I rappelled 32 stories from the Baltimore Marriott Waterfront Hotel on Saturday, June 9, 2012.  I am scared of roller coasters and water slides. I won’t even ride Space Mountain at Disney World, yet here I was for the second year, strapped into a harness, about to dangle from 32 stories high to benefit Rappel for Kidney Health, a fundraising event hosted by the National Kidney Foundation of Maryland.

Yet as the rappel volunteers lowered me off the roof, a sense of calm came over me. Instead of being scared, all I could think about was how much my jump, along with the rest of the rappellers, was giving someone else a shot at a new life.

I thought about how fearful and scared some of my patients are when facing surgery to receive a transplanted organ or how they feel when they find out for the first time that their kidney failed without warning. I thought about how many trials and tribulations my patients go through even before they reach transplant surgery. I thought about how the National Kidney Foundation of Maryland, through donations and events like this one, is able help so many patients, especially the ones I work with daily at UMMC.

I remembered how excited I was to tell Kelly Meltzer (Director of the National Kidney Foundation of Maryland) that I am not rapelling alone this year – that I had convinced three more people to join me because they also believe in the mission. My fellow team members from UMMC included Deb Evans, Heather Hurley and Michele Postol. I had such a great experience last year that I volunteered to be part of the Rappel for Kidney Health Committee for this year.

These thoughts overpowered any fear I had about rappelling 32 stories. As I made my way down the side of the Marriott, a funny thing happened, I actually began to enjoy it! It was great to have to a bird’s eye view of the Inner Harbor and the water.  It was an honor to be part of the Rappel for Kidney Health event and I can’t wait for next year’s jump!

Here are some key kidney facts from the National Kidney Foundation:

  • More than 90,000 people are on the waitlist for a kidney transplant.
  • 10 people die each day while waiting for a kidney transplant.
  • 26 million Americans have chronic kidney disease, and most don’t know it.
  • Every 5 minutes, someone’s kidney fails.
  • More than 380,000 people depend on dialysis for survival.

As a Pre-Transplant coordinator at the University of Maryland for 6+ years, I am honored to be a part of this institution. We have surgeons who are so technically advanced that they can care for the most complex patients when other centers can’t offer them any options. I have the pleasure of working with the pre- transplant coordinators, assistants, and nurses who live and breathe transplant all day, every day.

I believe that early detection of kidney disease, having a living donor transplant when possible, and getting an early referral to the transplant division can help kidney transplant patients have their best outcomes.

We are still raising money to help fight kidney disease, so feel free to donate to our UMMC Transplant team.

Rappel on!